No news update

Well after having the angiogram ct and going to my apt, all they said was the test came back negative and that they want me to do another MRI to see if they changed or went away. I haven’t updated since I got that “news”, it’s been hard to know that after all this I still know nothing. A lot of people say no news is good news or at least better then bad news, but to me it just makes me feel worse. It’s been exactly 6 months today since the seizure and we still know nothing. Then I had my apt with the urologist and they said until they start moving there is nothing they can do because they would have to do actual surgery and it’s not worth the risks. Which I totally understand but still sucks so much! I also did go to see the neurologist this past week and since ive been getting the headaches just about every night he upped my dosage on my one medication so hopefully that will start helping soon. I’m about two days into taking the new dosage and so far nothing yet.

I had another employee resign because he took another job and working 3 jobs would be too much on him. I am hoping to win a new suitcase which doesn’t sound cool but it’s worth like 600$ and it’s awesome lol and also in a contest to win a computer/tablet so that’s cool too.

Other then that I’m exhausted, my son is sick again, but he is with my mom this week so she is taking care of him right now. I’m just stressed out and flat broke, these dr bills are getting ridiculous. Like I understand they need to get paid but they need to understand that people who are sick sometimes are out of work which means they have no money, or you know have a million other apts they are paying for too. Plus insurance doesn’t cover my pain meds so that’s expensive too, just not sure what to do at this point. Life has become overwhelming and makes my head hurt more lol well hopefully things will turn around soon.

-Chrissy

Long night ahead

So I called and scheduled two of my dr apts. the urologist and the neurosurgeon. So hopefully I will get the results from the angiogram and find out what they will be doing about the kidney stones I have now. I’m a nervous wreck, they both had apts open tomorrow so of course I took them and now I’m freaking out. Like what if he says I have to do the biopsy and then something goes wrong. Or if I have to get the stones surgically removed again which sucked. I just wanna go to bed but I can’t stop thinking…. well I guess I’ll update when I know more and I’ll try to go to bed now since I have to be up at 2:30am lol

Night

-Chrissy

Too much

Sometimes it feels like life can be too much. Like every time you think you are going to get ahead of bills and stuff, things somehow fall apart. Our taxes got cut in half because of an old debt they said we owe which I’m not sure if we really do or not but whatever. So now we barely scraping by again, and of course I ended up going to the ER today to get checked out because I’ve been having side cramps and pains the last day or so. So I spent 130$ for them to tell me I have stones (which I knew) and basically other then the toridol, there’s nothing they can do for me and to just drink lots of water till I pass them. I’m glad it’s not obstructing anything and that my kidneys are ok but still, I’m in pain and I want the pain gone not just covered up by pills. Well I gotta open tomorrow so I better get to bed. Night everyone

-Chrissy

Kidney stone update

So, two days ago I had an ultrasound and I saw the results on my chart and turns out I have more. A few in both kidneys and measure up to 8mm 🙄. So now I’m going to see if they want me to come in earlier for an apt, or just wait till I start dying of pain lol. I’ve been thinking a lot since I have been going to the dr.’s a lot and catching up on apts. this year will be 15 years since my transplant. That means I will now be living longer with the new liver then I did with my own. Kinda scary thinking.

With everything that has happened in the past 8 years or so, I just feel like my body is slowly shutting down and getting worse. Maybe I’m just overthinking everything and stressing myself out more. Who knows.

I am looking forward to my work trip to Vegas next month but we will see how my health is then lol. I really hope I can go and I’m not sick or in the hospital again. Well I’m going to get some rest, I’ll update when I know more. Good night.

-Chrissy